PART XXIII:

IS THERE ANY THING

THAT HELPS?

 

 

 

Unfortunately, no cure has been found for a floxing, neither any medicine or supplement that makes a difference in the evolution of a recovery.

 

People little affected can find relief or help in drugs and suupplements with known properties, but a person strongly affected by a floxing, will not get any benefit from them, but on the contrary she/he will sometimes experience the opposite effect with respect to a normal person, because the alteration of many of his/her body systems is very deep and because of the chemical sensitivities developed.

 

It is depressing and very dispairing for severely floxed victims to check that supplements do not have on them now the same effect than on normal people or than on themselves before, but instead they get now negative repercusions.

 

During the reading of the whole Flox Report keep up a critical analysis, and specially in sections like this one where a lot of recommendations based on average experiences, are made.

 

 

167. GENERAL RECOMMENDATIONS FOR A FLOXING

 

There is a good site (www.medicationsense.com) , that belongs to Dr. Cohen. The site has an honest approach to the world of misprescription, overmedication and conflicting interests in the drug use. We recommend to have a look at it. It also contains a section on fluoroquinolones. There, Dr. Cohen describes what some floxed persons have reported to him, as to what supplements have helped them most. You can assess whether these proposals seem adequate for your case.

 

ALTERNATIVE POSSIBILITIES. Dr. Cohen.

Magnesium in doses of 400-1000 mg/day may be useful for reducing neuropathic pain or muscle spasms in some people.  Feedback from quinolone sufferers about magnesium has been mixed.  The U.S. recommended daily amount of magnesium is 320 mg for women and 400 mg for men.  Use of higher dosages should always be done with the supervision of a healthcare practitioner.  Seniors, people with kidney disorders, and those taking medications for cardiovascular or neurological disorders should have medical supervision even for RDA doses of magnesium.  Interestingly, Dr. David Flockhart also recommends magnesium for quinolone reactions.  Dr. Flockhart recommends low doses of milk of magnesia (1 or 2 teaspoons twice-daily), to be taken for several months.  His theory is that because of the affinity of minerals for quinolone antibiotics, magnesium might help leech some remaining fluoroquinolone molecules from the tissues. 

I am not a fan of milk of magnesia, which is a laxative.  If the goal is to absorb magnesium in order to get it into the tissues, chelated magnesium (e.g., magnesium aspartate, magnesium glycinate) or a magnesium solution (e.g., magnesium chloride) are absorbed better than milk of magnesium or cheap magnesium supplements.  It has also been suggested that magnesium could be used with calcium and other minerals.  The fact is, no one knows.  There's little solid science, so it is trial and error.  (For more information on magnesium, please go to the other magnesium sections of this website.)

B-vitamins have been reported to reduce tingling.  Pyrodoxine (vitamin B6) and pantethine (a derivative of pantothenic acid) have been reported to improve some types of nerve pain.  One person wrote to me that high doses of lecithin had helped with memory problems.  This is not farfetched. Lecithin contains several substances essential for normal nerve functioning.  One of these is phosphatidylcholine.

For anxiety or agitation, or to increase GABA in the nervous system, many alternative doctors recommend taking GABA, which is an amino acid.  GABA has some similar qualities to Valium and Xanax, and it may be helpful for anxiety, nervousness, or insomnia.  Too much GABA can cause sedation.  Inositol is also used for treating anxiety.

There are several alternative methods for reducing inflammation.  Omega-3 fatty acids (fish or flax oils) increase the anti-inflammatory prostaglandins (PGE3) in cell membranes.  GLA, found in primrose or borage seed oil, increases PGE1, which is also anti-inflammatory.  Studies have shown that high doses of omega-3 fatty acids and of GLA reduce the pain of arthritis.  This method takes time, several months, because it requires a rebalancing of the prostaglandins in the membranes of trillions of cells, but the ultimate reduction in inflammation is better, in my experience, than with prescription anti-inflammatory drugs. Omega-3 fatty acids and GLA are just two of many alternative methods for reducing inflammation.

If you are interested in alternative supplement and diet possibilities, I would suggest consulting with a knowledgeable alternative practitioner.  Many doctors have adopted alternative methods because they became dissatisfied with the drug-oriented mindset of mainstream medicine.  In my experience, alternative doctors are much more receptive to patients' concerns about medication side effects.  Good alternative practitioners are also far more knowledgeable about the biochemical systems of the body.  They have tests to measure people's levels of fatty acids, amino acid, antioxidants, minerals (including toxic minerals), and many other factors that may explain why some people are more vulnerable to certain diseases or reactions.  Good alternative doctors are knowledgeable about magnesium and other minerals, GABA, omega-3 fatty acids, and many other human-compatible therapies.  For example, alternative practitioners use alpha lipoic acid for treating neuropathies.  Alpha lipoic acid has long been used in Europe, and there is a considerable medical literature on this substance.  Few mainstream doctors are aware of alpha lipoic acid, magnesium, or the other natural remedies I have discussed above.  I cannot say that alternative doctors have the answer to quinolone reactions.  I can only say that it is another option worth considering.

If you run out of options with your mainstream doctors and would like to consult with an alternative practitioner, ask your friends whom they have seen and recommend.  Half of the population has consulted with an alternative practitioner at one time or another.  You can also find practitioners via the websites of the American College for the Advancement of Medicine (www.ACAM.org) or the American Holistic Medical Association (www.AHMA.org).  One caveat: many alternative practitioners do not accept insurance and many of their tests are not covered by health insurance plans.  Another caveat: different alternative practitioners use different methods; ask questions, ask for written information; many offices will send brochures or other information about practitioners' methods.

 

Our records do not match entirely with the above recommendations (in fact some are plainly contradictory like the suggestion about magnesium that we postulate that severely floxed persons should not take and we also "discovered" long ago that lecithin is one of the worst natural substances for a floxed person) but surely it is due to the fact that our data reflect mainly the responses of people strongly affected.

 

 

168. PROTOCOLS FOR NEUROPATHIES

 

There are many protocols of supplements and selfcare for neuropathies, specially peripheral neuropathies, some well founded and that can be of some help in those floxings that present with neuropathies predominantly.

 

We have found it innecesary to reproduce them here because you can find them in many reliable internet sites.

 

 

169. ADEQUATE EATING

 

Mild and intermediate reactions do not request a specific recovery program. They can more or less heal on their own. For severe reactions, healthy conduct and healthy foods are all part of a recovery plan. Each of us reacts differently, and there is a lot of controversy about this issue, but on average, there is a very common core of reactions that allows us to establish some recommendations. Stick to your already healthy diet. If you develop intolerances or bad reactions to some foods (very typical), avoid them during the years to come.

 

Obviously, it is strongly advised to avoid any quinolone or fluoroquinolone antibiotic; and to also avoid any meat, fish, dairy, eggs or animal product that has been treated with quinolones. Some contain concentrations of quinolones that are up to 50 times higher than concentrations in human tissues during a standard treatment, and can release relapses that range from mild to very severe. Do not believe food producers or health protection agencies if they tell you that is safe to consume meat or poultry that has been kept off antibiotics for 3 days before slaughter. It is not safe, the quinolones are not fully excreted, and enough of the drug remains in the animal’s tissues to bring you a very severe relapse.

 

AUTHORITY: SEC. 512 OF THE FEDERAL FOOD, DRUG, AND COSMETIC ACT (21 U.S.C. 360B). SEC.  20.813 ENROFLOXACIN [QUINOLONE] ORAL SOLUTION.

Conditions of use. It is used in drinking water as follows: (1) Chickens and turkeys--(i) Amount. 25 to 50 parts per million of enrofloxacin in drinking water. (ii) Indications. Chickens: Control of mortality  associated with Escherichia coli susceptible to enrofloxacin. Turkeys: Control of mortality associated with E. coli and Pasteurella multocida (fowl cholera) susceptible to enrofloxacin. (iii) Limitations. Do not use in laying hens producing eggs for human consumption. Administer medicated water continuously as sole source of drinking  ater for 3 to 7 days. Prepare fresh stock solution daily. Treated animals must not be slaughtered for food within 2 days of the last treatment. Individuals with a history of hypersensitivity to quinolones should avoid exposure to this product.


FASTING

During the acute phase of a severe reaction (first two years), it is quite common to feel much better when fasting for 18 hours or more. The same applies if during the fasting some probiotic cultures are taken. The improvement is felt in terms of less stiffness, less pains and less overall soreness. The original achy state returns as soon as the floxed person consumes any food. This fact, discovered by chance by some floxed persons, happens to be common knowledge among rheumatoid arthritis sufferers.

 

WATER

A common mistake in the early stages of any floxing is to take an excessive amount of water daily. Perhaps it is not as relevant for mild or intermediate floxings, but it is not recommended for severe reactions. Too much water increases the overall feeling of sickness and can deplete the body of essential minerals, which are difficult to get through an intoxicated intestine. The water ingested by floxed persons should be of good quality and balanced mineral composition, with low sulphate load and of course not fluorinated, and not chlorinated if possible. The amount of water has to be adjusted for body weight, activity needs, and climate, and also considering the rest of the sources of water (fruits, vegetables, juices). Cases of chronic hyponatremia have been reported in floxed persons that take water compulsively. In winter and for sedentary activities one and a half liters should suffice for a body weight of 70 kilograms (150 pounds). In summer, exposed to heat and sunshine, and being active three liters is normal. Many floxed persons develop diabetes insipidus as a side effect, and large amounts of water increase their discomfort.

 

SUGAR

QUICK RECOMMENDATION:

In severe reactions, the three foods to avoid above all are SUGAR, SOY and OMEGA-3 oils.

Sugar has an adverse influence increasing insomnia, restlessness and neurological pains. If a floxed person should have to choose a single food to avoid, that would be sugar. Sugar worsens all symptoms of QTS (Quinolone-Toxicity-Syndrome). Fluoroquinolones impair the glucose metabolism. We do not know if a worsening of symptoms after consuming sugar (or honey or any sweets) means that the glucose metoblism is injured. In severe floxings, this intolerance to sugar lasts more than five years on average.

 

ALCOHOL

Alcohol is also vaso-constrictive and a toxin for the neurological system, so it is better to avoid it, although clearly some wine or beer has an immediate soothing effect. The definitive experience of most severe floxed persons is that more than two or three glasses of wine weekly is always paid in terms of high pains but only in the most affected nerves.

 

CAFFEINE AND GRAPEFRUIT

The floxed body does not metabolize caffeine so it can increase your insomnia problems. According to many reports, the floxed person cannot properly metabolize caffeine because the quinolones have damaged (extraordinarily impaired) the cytochrome P450 system that is in charge of the clearance of many drugs in the body. This explains why so many foods, additives and products cause problems to floxed persons, and why a severely affected floxed person cannot metabolize caffeine properly for at least 5 years post-floxing. Grapefruit juice has the same inhibitory effect on the cytochrome P450 system as quinolones, so it is better to avoid it now and forever as a healthy measure.

 

CHOLESTEROL

Do not allow your cholesterol to drop too low. Some floxed persons have reported improvements with organic food high in cholesterol. However, scientific research shows that the toxic effects from these drugs on the muscle tissue acts mainly on the endogenous synthesis of cholesterol (the one produced by the body) rather than cellular uptake of preformed cholesterol (the one ingested). Maintain it a bit higher than your normal level, assuming that your normal level is ok, obviously. Note: on the short term, right after the treatment, quinolones cause a sharp increase in the cholesterol levels (up to three fold) that tend to normalize in the first months.

PARADOXES:

Many supplements with healthy properties and safe records, are very detrimental for severely floxed persons, for unknown reasons.

 

OMEGA-3

This is one of the paradoxes of floxing. Omega-3 oils are virtually side-effects-free for the general population, and are a healthy food. The same can be said for non strongly affected floxed persons. Omega 3 oils help to overcome the stiffness and the reduction in range of motion of every joint and help to keep a balanced diet.But for a severely floxed person and some other floxed persons, the effect is just the contrary. Fish oil (we do not know which section of the oil: CLA or others) releases strong relapses in neuropathies (pains), fasciculations all over the body, and joint pains after some days of ingesting it. This has been tested many times. We have observed this kind of contradictory effects with many supplements.

 

DILATORS

It is also beneficial to take some red peppers, and some nuts. Dilators help with insomnia, but increase some of the dryness symptoms. They have, as many other supplements and foods, a contradictory effect. Sometimes you will wish to take advantage of the vasodilating properties, and others you will try to avoid dry mucous membranes.

 

THINNERS

Garlic and onion might help the exchanges at cellular level and movement along the small damaged blood vessels, but do not mix large amounts of these with other supplements that they could interact negatively with or could amplify their actions. Garlic, in particular, taken in large doses (4 cloves a day) increases insomnia problems according to several well-documented reports from floxed individuals. All thinners increase the risk of internal bleeding in a severely floxed person. They promote movement of fluids within the body, but also increase some central and peripheral nervous systems symptoms.

 

In the first instance it might be considered wise to order a test for food and supplement tolerance for every floxed person. It consists of an analysis of the IgG reactions to a hundred common foods and additives, so that the floxed person could know which ones release an IgG reaction, because such reactions could exacerbate the floxing symptoms as they would add more immune complexes to the already burdened blood vessels with the IgG and IgM complexes liberated after the toxicity. However, trials done with a few floxed persons do not show dramatic improvements if they avoid foods to which they are intolerant (IgG reactive), indicating that the drug induced immune reaction is of another order of magnitude with respect to food intolerances.

 

In the section with information for athletes you can find more information on the effects of certain foods, vitamins and supplements on the rebuilding of connective tissue.

 

 

170. EXPERIENCES WITH SUPPLEMENTS